“That’s it! I can’t talk to you anymore! I’m done!”
This is what I scream at my husband, in front of my children, before I run up to my bedroom and bawl in the dark.
It’s rare for me to scream at my husband. I mean, really, really rare. We definitely don’t agree a lot of the time, but that’s what makes our marriage so much fun. And when we do fight, we do it in quiet, angry whispers. Never screaming.
And we never, ever fight in front of the children.
I know, as I curl up into a ball on my bed, that he is now left with traumatized children who would need some sort of explanation. And I don’t care. I’m furious, and it seemed a fitting punishment.
There’s that statistic that hangs over our marriage— the one that says that divorce is almost inevitable when there’s an autistic child in the mix. 80% of married couples with autistic children end up divorced. Before this moment, I’d almost felt like we were better than that. Our marriage is strong enough to weather any storm. Plus, we both love Isaac so much— how could he ever tear us apart?
We were so obviously the other 20%.
And yet, there I sat, with tears pouring onto my pillow, contemplating divorce for the first time ever.
Even in the bitterest moment, it wasn’t that I hated Brian. I don’t think I’m even capable of that. It was that I hated disappointing him, and wouldn’t it just be easier if he could go off and be Superman somewhere else so I could get on with my life as “Medioce-At-Best Woman.”
I don’t think it’s autism that rips couples apart. It’s that people mourn differently. They cope differently.
And sometimes, because we’re human and therefore occasionally weak and prideful, we judge each other for the way the other one copes. And we feel threatened by it too.
Brian is a researcher. Research, research, research. Between the two of us, he’s the autism expert. I’m just… not. I work all day to help my little boy. I go to therapy with him, and I try to learn what the therapist is doing and practice it all at home. I do well with targeting Isaac’s specific needs, rather than seeking out information on autism in general. Brian, on the other hand, can recite to you the entire debate about vaccine-related autism. The vaccine that supposedly, or not, triggers autism is given to children at 18 months old.
But, see, since Isaac was only 12 months old when he started displaying autistic tendencies, I don’t see any reason to become an expert on a vaccine that definitely did NOT cause my son’s autism.
This is just an example of our differences. There are lots of them. And yes, they’re all just as trivial.
So, I ask myself, why am I suddenly hashing all of this out? Why am I suddenly screaming at my husband over all of this?
And I realize the stupid, but painful truth. My feelings are hurt. Not by Brian, but by our autistic son. Because our son loves Brian, but he doesn’t love me.
It’s something I vowed that I would never take personally. And usually I don’t. But picture Thanksgiving dinner, for instance, where 35 of Brian’s closest friends and family were packed into one room. Lots of noise, lots of chaos, and a large audience. They probably weren’t staring at me, judging me, but I felt like they were.
My son hates me. Over and over again, he made that clear for our audience. He wouldn’t let me feed him. Just Daddy. He wouldn’t let me hold him. Just Daddy. And the room is staring, wondering why I make Brian do everything, not understanding that I’m DYING to help.
“Say ‘more,’” I say to Isaac, showing him the sign language. Meltdown ensues.
“Say ‘more,’” Brian says. “More!” Isaac says back, both vocally and with sign language. Everyone laughs and giggles and claps.
And finally, Isaac doesn’t let me touch him. I can’t even pick him up when he falls and hurts himself. When I tried, he screamed as if I were torturing him.
And the pit in my stomach grows. As does my shame. Every person in the room is now aware that I’m the worst mother in the world. But no one is more aware of it than I am.
And so when Brian suggests a new therapy approach or a change in Isaac’s diet, sometimes I disagree. My child has spent most of his life severely underweight. He’s finally gained enough weight to be on the growth chart, thanks in large part to bread and pasta. So even though Jenny McCarthy “cured autism” by taking gluten out of her son’s diet, it just seems like a really bad idea in Isaac’s case, at least right now. I can’t stand to go back to the world of “failure to thrive,” and I tell Brian so.
But… there’s this thing in the air. The thing that suggests that I’m obviously wrong, and Brian is obviously right. Because I’m the bad parent. He’s the good one.
And so I find myself crying in my dark bedroom, wanting to run away from everyone and everything that makes me feel like a failure when I’ve been trying so hard not to fail. And if that means contributing to the divorce statistic, maybe that’s just how it has to be.
Fortunately, I know that I don’t mean that.
My mind flickers, then, to the four little people downstairs who were left bewildered and even scared when I stormed out of the room. I realize that maybe there’s still a tiny part of me that’s capable of being a good mom, and hiding out in my bedroom and throwing myself a pity party isn’t really who I want to be.
I wipe away the tears and emerge from my room. I come downstairs to find that Brian’s made dinner and he’s feeding the kids. I almost resent him for holding it all together when I’m falling apart. At the same time, I’m grateful that I don’t have to cook. The kids are careful with me— they know things are strained and they don’t want to contribute. Eventually they finish eating and wander back to their toys and their projects, leaving me and Brian alone in the kitchen.
“I’m so sorry,” he says suddenly, breaking our silence, as he wraps his arms around me. “I never want to make you feel like that. Ever.” I believe him. It’s impossible not to. He’s so warm, so sincere.
I lean into him, but I can’t respond. There aren’t words, because I have no idea what I’m feeling anymore. I just cry all over again, but this time I’m not alone in the dark. I’m with him. He lets me cry, because somehow he understands that that’s what I need to do. Because, despite my utter mediocrity, he loves me. Possibly as much as I love him.
And we’re going to make it.